tag:blogger.com,1999:blog-9182988753708932825.post3280588048486223143..comments2023-09-20T09:18:26.271+01:00Comments on Pituitary Ademoaner: The Very Scary Case of Kane GornyEmer Greyhttp://www.blogger.com/profile/06156427719511575959noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-9182988753708932825.post-64518590920881755082019-03-14T01:48:18.618+00:002019-03-14T01:48:18.618+00:00 DR CHUKWU MADU HERBAL HOME, YOU HAVE SAVED PEOP... DR CHUKWU MADU HERBAL HOME, YOU HAVE SAVED PEOPLES LIFE....<br />MY SISTER cured of HIV with the used of natural herbs. My name is .SHINA ADEYEMI and am from SENIGAL. SHE love herbs so much. Most times, injection and drugs are just a waste of time. SHE was cured 4 months ago, SHE suffered from HIV for 6yrs but with the help of Dr.CHUKWU MADU herbaL HOME, SHE was cured within few weeks of drinking the herbs he sent to her through courier delivery service. 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DR.CHUKWU MADU HERBAL HOME have herbs that cures Hiv, Herpes, diabetics, asthma, hepatitis, HBP, ST D, cancer, chronic, etc. Contact DR.CHUKWU MADU HERBAL HOME through his Email address on: dr.chukwumaduherbalhome@gmail.com or call him on +2347030936239 Please share the good news to other people once you are cured. <br /><br /><br /><br /><br />KYNISHA-MIAhttps://www.blogger.com/profile/03866897749005328877noreply@blogger.comtag:blogger.com,1999:blog-9182988753708932825.post-28225939781366664732012-07-19T16:07:15.603+01:002012-07-19T16:07:15.603+01:00It really does highlight just how pushy you need t...It really does highlight just how pushy you need to be, both as a patient and as a relative or friend of a patient. I think part of the problem is simply not knowing where you should go; having the phone number of an endocrinologist or endocrine specialist nurses is a real comfort.Emer Greyhttps://www.blogger.com/profile/06156427719511575959noreply@blogger.comtag:blogger.com,1999:blog-9182988753708932825.post-62459981619416400482012-07-19T15:55:07.351+01:002012-07-19T15:55:07.351+01:00Hi Jon! Thanks so much for the invitation, I will ...Hi Jon! Thanks so much for the invitation, I will have to check the group out; and thanks for the praise as well, I'm delighted that people have found it to be an interesting post. The level of confusion in the reporting of the case really has surprised me - given that I would have thought that half an hour on Wikipedia could clarify anything that journalists didn't understand, it seems very sad to me that so many haven't even taken that time to make sure they're not misinforming the public.Emer Greyhttps://www.blogger.com/profile/06156427719511575959noreply@blogger.comtag:blogger.com,1999:blog-9182988753708932825.post-50511898834352153742012-07-19T15:46:13.366+01:002012-07-19T15:46:13.366+01:00Wow, that is really scary. It just seems crazy tha...Wow, that is really scary. It just seems crazy that hospital is the one place where people who need regular medication to keep functioning can't be certain of being able to take it. DI is so treatable that it's just terrible that this can be allowed to happen. <br /><br />Thanks so much for all your kind words :) It's really nice to know that people enjoy what I've been writing.Emer Greyhttps://www.blogger.com/profile/06156427719511575959noreply@blogger.comtag:blogger.com,1999:blog-9182988753708932825.post-3109464214678979452012-07-14T23:03:14.614+01:002012-07-14T23:03:14.614+01:00Since Atkinson morleys hosp closed, there has been...Since Atkinson morleys hosp closed, there has been neurosurgical expertise on site at st. George's which makes this case all the more incomprehensible. The only thing I can think is that this patient fell between the 2 areas of expertise with both assuming the other knew more than was actually the case. Also really important info is often written on the front of the notes in large print eg allergies etc so everyone doesn't need to trawl through acres of notes to get to fine detail. It sounds like communicationbetween staff and family had broken down irretrievably even before the ultimate tragic end. I think that this patient may have had a phaeochromocytoma.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9182988753708932825.post-51243513234249259252012-07-13T17:26:04.769+01:002012-07-13T17:26:04.769+01:00This is an excellent piece about a scandalous fail...This is an excellent piece about a scandalous failure of care. As an endocrinologist, I know how easily this can happen! Usually in an alert and conscious person with free access to water, accidental omission of desmopressin is not fatal - if this can happen to such a person in a large London teaching hospital, imagine the risk to those without intact thirst! Having looked after these patients, written all over their notes to contact endocrinology immediately they are admitted, and primed their families to ask for this too, I'm sorry to say that they were frequently still admitted under non-specialist teams without our knowledge. My advice to all pituitary patients would be to get your endocrinologist's direct hospital contact details, and carry them on you so you can call them, or paramedics/A&E staff can if you are admitted unexpectedly.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9182988753708932825.post-85179659133030899642012-07-13T08:41:47.964+01:002012-07-13T08:41:47.964+01:00Emer - please come and join us on the Medical Jour...Emer - please come and join us on the Medical Journalists Association group page on Facebook. The points you raise are very important, and you write lucidly and with great knowledge. <br /><br />https://www.facebook.com/home.php#!/groups/2315321032/<br /><br />I am also a medical journalist with a pituitary condition, and concerned about the way pituitary conditions are (mis)reported by the media.<br /><br />Please also feel free to write to me directly so we can engage in a dialogue about this issue. Regards, JonJon Danzighttp://www.independent.co.uk/life-style/health-and-families/health-news/acromegaly-my-diy-diagnosis-397646.htmlnoreply@blogger.comtag:blogger.com,1999:blog-9182988753708932825.post-73657413396740892222012-07-12T12:04:03.238+01:002012-07-12T12:04:03.238+01:00What an excellent piece. If you are not medically ...What an excellent piece. If you are not medically qualified yourself, you seem to be what is known as an expert patient. You have set out medical facts very clearly and far better than any of the media reports accessible online.<br />Clearly there have been many failures of procedure and of communication in this tragedy. But the worst of it is the arrogant refusal of the nurses and doctors to do two things: (1) give Kane Gorny the water he was asking for and (2) take notice of the desperate attempts made by him and his mother to be taken seriously.<br />They refused the basic physical necessity of life (water) and they refused a basic social necessity of life (listening to the other person).<br />So much power in the hands of so much ignorance.<br />Well done you and best wishes.Tom Blacknoreply@blogger.comtag:blogger.com,1999:blog-9182988753708932825.post-11433278268513059272012-07-12T09:22:56.786+01:002012-07-12T09:22:56.786+01:00This one struck a chord with me ! After my (benign...This one struck a chord with me ! After my (benign) pituitary tumour removal, I was back in hospital with brain infections for many weeks. As well as the infection I was being treated for a number of pituitary issues which had emerged including ACTH and AHD (with me for life now). <br />The doctors were still tryng to work out levels and times for pills but the rule all the time was DRINK TO THIRST. And I did - litres of water. <br />Then one evening a nurse told me I was only to drink 600ml in the entire night. (I would usually drink this every half to one hour) . This was the worst night. I was only allowed to suck on ice.(did a lot of that).<br />The next morning my endocrinologist hit the roof-as this almost killed me. The nurse had misinterpreted an acronmyn or reading , thinking I had another medical issue. <br /><br />So yes, I can see how this could happen.<br /><br />You are being quite an expert on all areas of pituitary aren't you ! I have been entertained and amazed by your hospital reportage. I loved the weirdness rating. Great concept and so much fun to read.<br /><br />Your blog is fantastic and I hope there are more people out there that appreciate it. Thanks for sharingalissadukehttps://www.blogger.com/profile/11150731700494145900noreply@blogger.com